NAAF Tortoise & Hair Walk: Are you in?

This year, the heat is on in Scottsdale!

This year, NAAF will hold a Tortoise And Hair Walk for people with alopecia. The four mile walk will take place at the Hyatt Regency Scottsdale on Saturday, June 30th. All are invited to participate. PeytonPecia.com has started a fundraising team, team PeytonPecia, to raise money for NAAF. My goal is to raise 2,000 dollars by the time the Tortoise & Hair event comes around.

Teamwork makes the dream work!

You can join our team right now or Click Here to Donate. I look forward to the donations, new members, and old faces to come at this year’s Tortoise & Hair walk!

Hair Today, Gone Tomorrow

Sometimes, you just have to express.

This poem is from a time when I was rapidly losing my eyelashes and felt very sad. As you can guess from the first stanza, I had only fourteen. I counted them every day as the number slowly wound down to zero. This was a tough emotional time for me and I was glad when it was over. As the poem winds down, you can see how I realize the benefits of alopecia and end on a happy note.

I think that with the right mindset, alopecia won’t bother you in the least.

 

 A Compilation of Haikus Concerning Alopecia Areata

Fourteen eyelashes

I feel sad about my loss

I wish I had more

 

No hair on my head

Alopecia is bad

No good medicine

 

Friday reveals my

Big secret, I take my wig

Off on this half-day

 

I hope I can grow

Back my hair, kids get confused

Is it the wig or hair?

 

I sometimes wish I

Could go back in time to warn

My mom about this

 

I wonder why God

Gave me this condition, as

I don’t like it much

 

But I can do a

Lot of things, like draw turtles

With pen on my scalp.

 

I have a wig, but

I get hot in it, so I

Don’t wear it too much

 

It’s cool to see our

Differences and compare them

See diversity

 

If you could have this,

What approach would you take, or

Would you accept it?

Top 3: My Weird Experiences with Alopecia

Sometimes people have the best of intentions. Others, not so.

Throughout my life as an alopecian, I’ve encountered some really weird things. As a reminder, not everyone is like this. Some people take pity on you, others feel like you deserve everything for being bald, and a lot of people think you have cancer. Without further ado, in no particular order, here are the top three weird things that happened to me.

1.

My mom and I were traversing a mall in La Jolla when I spotted a LEGO™️ store. I love those stores because I enjoy looking at the different sets. We browsed around—well, I did—and then it was time to go. There was almost nobody there, and the cashier saw her chance and gave me a little suitcase-shaped set. She must have thought I had cancer or something, because it was meant for me. I said thank you a little timidly, and went on my way. Later, I opened it to see it included a mini figure and some accessories. The cashier had the best of intentions, and I liked the gift very much, but it is very weird to get a gift because of something that never happened!

2.

My family was having brunch at a restaurant, and my pancakes’ maple syrup was delicious and very sticky. I took a break from my food and went to the bathroom. There, I realized I needed to go anyway. After I came out of the stall, I saw a woman washing her hands. She said, “Are you finishing your treatments?” She thought I had cancer! I explained,

“No, I don’t have cancer. I have another disease, though.” I stayed out of the details because I didn’t feel like explaining, and so I stayed silent. An awkward pause ensued, and I moved in to wash my hands.

“Oh. I’m finishing mine.” I then moved away to join my family and tell them about what happened.

3.

Our family was going to a place called the Camarillo Outlets, where there were many outlet stores all in rows, circling around huge parking lots. When it came to savings and wide varieties of wares, you had to go there. We stopped at a pretzel place, bought some food, and sat down on the curb. A group of three boys and their parents were behind us, and the middle child came over and asked, “Are you a boy or a girl?” I replied,

“I’m a girl.” Then he said,

“I’ve never seen a girl like you before!” My mom was surprised that the parents had not caught them. The next time the youngest came over.

“I’ve never seen anyone like you! Goodbye, I’m going to faint now,” and he tilted over by way of pretending to faint.

“That’s rude!” I exclaimed. The parents were quite lazy, and did not reprimand their children. I decided to not let that get in my way, though, and continued shopping with unmarred nonchalance.

So this ends our story. Remember, most kids ages 4-8 won’t know any better, and will make remarks they don’t mean to hurt. Sometimes, though, they will do it just to see you break down, so don’t let them push your buttons. Honestly, most people don’t say anything. Whether they consciously remind themselves not to or just feel like there is nothing to say, we’ll never know. Just be yourself and, as I say, put duct tape over your buttons so others can’t push you.

It’s Okay To Be You

When I lost my hair, I wondered how I would cover it up. You can read about how that went in another post, “To Have or Not To Have: picking out a quality wig”. Well, I really liked that wig. Like, really. After wearing it for 3 weeks, the faults started to come out. During P.E., I found that it made me sweat more, and it became kind of itchy. Not to say wigs are always bad, but after 2 months, I was done. I decided not to wear my wig anymore. Here’s why.

I thought to myself, “If I’m bald, why not be bald?” If you have spiky blue hair, have spiky blue hair. If you insist on a ponytail every day, go for it. If you’re bald, be happy with it. It’s alright to be different. I still don’t wear my wig, and if you want to, do it. If you don’t, why not? It’s perfectly fine to be unique, and alopecia puts that idea front and center.

To have or not to have: picking out a quality wig

When I was losing my hair last year, I faced a big dilemma: how to go to school without everyone staring at me? Good thing was, I had an option. I could get a wig! We searched around and found Newport Hair Loss Center, a place for people like me who are bald or going bald after alopecia or chemotherapy. There was a great selection of cool wig colors, plus I could have it any way that I wanted! The one drawback of a wig, however, is that once you make a move, you can’t wait to undo it. I’m very impressed with their quality, especially because of this: these wigs have special silicone tabs that hold the wig to my scalp, making it nearly impossible to pull the wig off by the hair. Lots of friends tried to over the next week, but none succeeded. There are many great wigs out there to help you feel comfortable with alopecia areata, and I advise you to check some out in the near future.

Since my blog, peytonpecia, does refer to turtles in its motto, I’ve decided to make my tortoises, Crystal Sprinkles and Prism Frosting, our blog mascots! This is Crystal Sprinkles.